You can find the event report and full recording here.

On February 8 from 14:00 to 15:15 CET, the MEP Lung Health Group is organising the virtual event ‘Improving lung health through the future European Health Data Space’. The event is hosted by the Group members Co-Chair MEPs Manuel Pizarro (S&D – Portugal) and Sara Cerdas (S&D – Portugal).

The event will mark the launch of the European Lung Health Group (ELHG) policy brief on the future European Health Data Space (EHDS), a document to expand the group’s BREATHE Vision on the topic of digital health. (See agenda below)

The event will bring together digital health experts, policy makers, healthcare professionals, and patient representatives to discuss how the expectations from the respiratory community could be reflected in the future European Health Data Space (EHDS) legislation, and its huge potential to improve prevention, diagnosis, management and quality of life of people living with lung diseases.

The roundtable discussion will look to answer the following questions:

  • The future of EHDS to improve lung health prevention and care – dream or reality?
  • Digital health technology to serve respiratory outcomes – a change in paradigm?
  • Digitalisation to enable self-management – what role for patients?

The event will be moderated by journalist Dave Keating, Brussels Correspondent for France 24.

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Event Agenda

Time

Topic

Speaker

14h00-14h10

Welcome and launch of the European Lung Health Group Policy Brief on the European Health Data Space

 

Opening remarks

-   Dave Keating (Moderator)

 

-   MEP Sara Cerdas (S&D/Portugal)

14h10-14h50

 

 

 

 

 

 

 

14h50-15h10

Roundtable Discussion

  • The future EHDS to improve lung health prevention and care – dream or reality?
  • Digital health technology to serve respiratory disease outcomes – A change in paradigm?  
  • Digitalisation to enable self-management – What role for patients?  

 

Questions and Answers with the audience

 

- Ornella Martinello, Policy Coordinator, COVID-19 response and Health Policy, European Commission Secretariat General (EC)

- Arzu Yorgancıoğlu, Advocacy Chair, European Respiratory Society (ERS)

- Armando Ruiz, Board Member, European Federation of Allergy and Airways Diseases Patients' Associations (EFA)

- Sarah Collen, Co-Chair of the Taskforce on Health Data, Biomed Alliance

- Marc Lange, Secretary General of the European Health Telematics Association (EHTEL)

- Brice Van Eeckhout, Comunicare Solutions SA, and DRAGON (IMI Project)

15h10-15h15

 Wrap up and Conclusion

-   MEP Manuel Pizarro (S&D/Portugal)

 

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Speakers

MEP Sara Cerdas, Group of the Progressive Alliance of Socialists and Democrats (S&D), Portugal

Ms Sara Cerdas is a Portuguese medical doctor and since July of 2019 a Member of European Parliament within the Social & Democrats. She is member on the Committee on the Environment, Public Health and Food Safety (ENVI) and substitute member on the Committee on Transport and Tourism (TRAN). She is also member of the special committee on Beating Cancer (BECA) and the S&D shadow rapporteur for the EU4Health Programme. Sara Cerdas is co-chair in the European Parliament's Working Group on Health, which brings to discussion European health issues with stakeholders and experts. She is Member of the European Parliament MEP Lung Health Group, and of the Interest Group on Allergy and Asthma.

MEP Manuel Pizarro, Group of the Progressive Alliance of Socialists and Democrats (S&D), Portugal

Mr Manuel Pizzaro is a physician and a Portuguese politician, member of the Portuguese Socialist Party. He was elected as a Member of the European Parliament in 2019 and joined the political group of the Progressive Alliance of Socialists and Democrats. Among other duties, he is also serving as a substitute member of the Committee on the Environment, Public Health and Food Safety (ENVI). He is Member of the European Parliament MEP Lung Health Group.

Ornella Martinello, Secretariat General at European Commission

Ms Ornella Martinello is policy coordinator for health policy at the European Commission’s Secretariat General. In the last two years, she has followed a number of files related to the EU response to the COVID-19 pandemic, including the management of the Emergency Support Instrument which funded, inter alia, the EU vaccine strategy and the EU Digital COVID Certificates system. As part of the health team of the Secretariat General, she coordinates digital and cross-border health policies, including the work on the upcoming proposal on the European Health Data Space.

Prof. Arzu Yorgancıoğlu, European Respiratory Society (ERS)

Prof. Arzu Yorgancıoğlu is full time professor at the Department of Pulmonology, Celal Bayar University Turkey. She is a clinical specialist in pulmonology and has a long-term scientific interest in the diagnosis and treatment of asthma and chronic obstructive pulmonary disease (COPD). She is a member of GINA (Global Initiative for Asthma) Board of Directors and the coordinator of the reference site European Innovation Partnership on Active and Healthy Aging (EIP on AHA) in Turkey.

She is the chair of the WHO GARD Executive Committee and the Advocacy Council Chair of European Respiratory Society (ERS) Executive Committee. She has been elected as the fellow of ERS and ATS in 2019.

Armando Ruiz, European Federation of Allergy and Airways Diseases Patients' Associations (EFA)

Mr Armando Ruiz is a Board Member at the European Federation of Allergy and Airways Diseases Patients Associations (EFA) and leads the Spanish Federation of Allergy and Airways Diseases Patients’ Associations (FENAER). He has a strong medical and scientific background and experience with digital therapeutics.

Marc Lange, European Health Telematics Association (EHTEL)

Mr. Marc Lange is Secretary General of EHTEL Brussels, Belgium and has 30 years experience in Project/Programme Management of international/European projects and close to 20 years in the digital health field. His experience covers domains such as (1) facilitating sharing good practices in a multi-disciplinary environment, (2) advising implementers and policy makers on the digital transformation of health and care systems and (3) supporting international/European projects in reaching out a large and multi-stakeholder audience.

EHTEL is the leading collaboration platform for decision makers and implementers in Europe, engaged in supporting the transformation of the health and care practice in Europe through digital health. The association brings together under one roof a wide range of constituencies crucial for the betterment of health and social care with digital health.

Brice Van Eeckhout, Comunicare Solutions SA, and DRAGON (IMI Project)

Mr Brice Van Eeckhout is Co-founder and managing director of Comunicare Solutions, a Belgian start-up developing software solutions to empower patients and work towards personalised digital care pathways, improved care outcomes and quality-of-life. He is also part of the DRAGON project, an EU-funded initiative aimed at increasing the response capacity of healthcare systems in current and future pandemics.

Sarah Collen, BioMed Alliance

Ms Sarah Collen is EU Policy Coordinator at the European Association of Urology, and co-chair of the Health Data Sharing Taskforce of the BioMed Alliance, an initiative of leading European medical societies that together include more than 400,000 researchers and health professionals. She is also a registered stakeholder in the Joint Action Towards the European Health Data Space (TEHDAS) which helps EU member states and the European Commission develop and promote concepts for the secondary use of health data to benefit public health and health research and innovation in Europe.